Title Breathe, Baby, Breathe!
Subtitle Neonatal Intensive Care, Prematurity, and Complicated Pregnancies
Author Annie Janvier
ISBN 9781487523060
List price USD 32.95
Price outside India Available on Request
Original price
Binding Paperback
No of pages 280
Book size 152 x 228 mm
Publishing year 2020
Original publisher University of Toronto Press
Published in India by .
Exclusive distributors Viva Books Private Limited
Sales territory India, Sri Lanka, Bangladesh, Pakistan, Nepal, .
Status New Arrival
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Reviews:

"Breathe, Baby, Breathe! is incredibly honest, and there are times when you are brought to tears.

Dr. Janvier not only discusses what it is like to be the mother of a premature baby, but its impact on her own sense of self-worth and the challenges to her family."

—Lainie Ross, Professor of Clinical Medical Ethics and Pediatrician, University of Chicago

 

"Breathe, Baby, Breathe! is a book about resignation, resilience, and transformation."

Nicolas Krawiecki, MD, Professor Emeritus of Pediatrics, Emory University

 

"Annie Janvier has written the best book by far about prematurity for parents and health care providers. As a neonatologist, bioethicist, and mother of an extremely preterm infant, her voice is unique, and we should all listen to her wise and eloquent words. Her intensely honest account of giving birth to Violette at 24 weeks’ gestation and her subsequent experiences as a mother in the NICU is quite remarkable. This amazing book is written from Annie’s heart but also from her brain and her gut."

—Edward Bell, MD, Vice Chair for Faculty Development, Department of Pediatrics, Professor of Pediatrics – Neonatology, University of Iowa Health Care


Description:

Every year in the United States, 12% of all births are preterm births, 5% of all babies need help to breathe at birth, and 3% of neonates are born with at least one severe malformation. Many of these babies are hospitalized in a neonatal intensive care unit. Annie Janvier and her husband, Keith Barrington, are both pediatricians who specialize in the care of these sick babies and are internationally known for their research in this area. In 2005, when their daughter Violette was born extremely prematurely, 4 months before her due date, they faced the situation "from the other side," as parents. Despite knowing the scientific facts, they knew nothing about the experience itself. "Knowing how a respirator works did not help me be the mother of a baby on a respirator," writes Annie. She did not know how to navigate the guilt, the uncertainty, the fears, the predictions of providers, and the responses of friends and family. In a society obsessed with goals, performance, efficiency, and high percentages, she discovered that the daily lack of control that new parents of sick babies face changes their lives. And that, for physician parents, it also changes the way they practice medicine.

Most of the articles and books written about premature babies and neonatal intensive care units examine the technological and medical aspects of neonatology. Breathe, Baby, Breathe!, however, is written in the voice of a parent-doctor and tells the story of Violette and her parents, alongside the stories of other fragile babies and their families with different journeys and different outcomes. With the story of Violette at the core of the book, the interwoven stories and empirical articles provide essential insights into the medical world of premature birth. This original clever blend of narratives and evidence provides a new, experiential view of the way forward during a parental crisis. The book ends with practical recommendations for clinicians, parents, and families.


Contents:

Foreword by John D. Lantos and William Meadow

Acknowledgments

Introduction

 

Part 1: Labour and Prenatal Counselling

The "Perfect Pregnancy" Is a Scam • You Made Your Bed ... • 12 May • No Bed of Roses • 13 May • 15 May, Night • End-of-Life Decisions for Extremely Low-Gestational-Age Infants: Why Simple Rules for Complicated Decisions Should Be Avoided • Difficult Decisions • Naming • 19 May • 20 May • Personalized Decision Making: Practical Recommendations for Antenatal Counseling for Fragile Neonates


Part 2: The Delivery and the First Days

The Delivery • Memories from Gene Dempsey • 23 May • 24 May • Half Mother at Home • 26 May • 30 May • 3 June • 6 June • 7 June • 10 June • 11 June • 13 June • 14 June • The Big Berthas


Part 3: The NICU

Dear Violette • Pepperoni Pizza and Sex • 17, 18 June • For Audrey-Anne • Shooting Stars • 19, 20 June •  21 June • Life Trajectories • 23 June  • Red Underwear • My Love • 24 June • 26 June • 27 June • Other People • 4 July • Just Being There • 20 July


Part 4: Progress and Setbacks

20 August • 22 August • Dear World • Learning to Fall • 24 August • 31 August • Term MRI for Small Preterm Babies: Do Parents Really Want to Know, and Why Has Nobody Asked Them? • Measuring and Communicating Meaningful Outcomes in Neonatology: A Family Perspective


Part 5: Coming Home

Germ-o-phobia • Meanwhile, with My Other Kids ... • Rewriting Your Life • A Mother"s Love • The Backpack: The Sequel • After Violette, Am I a Better Doctor? • Tattoos, Beer, and Bow Ties: The Limits of Professionalism in Medicine • 26 September • What"s Your Dream? • 22 May 2011 • Stronger and More Vulnerable: A Balanced View of the Impacts of the NICU Experience on Parents • Survival Guide for Parents


Part 6: Neonatology Information for Parents, Families, Clinicians, and All Those Who Care about Babies

Getting the Bad Stuff Out • Seven Don"ts for Families and Friends Helping Parents • The Best Ways to Help Parents in the NICU • Ethics and Etiquette in Neonatal Intensive Care

Notes

Glossary of Common Abbreviations Used in the NICU

Selected Bibliography

Resources and Further Reading

 

About the Author:

Annie Janvier is a professor of Paediatrics and Clinical Ethics at the University of Montreal, and a Neonatologist, clinical ethicist and researcher at CHU Sainte-Justine.

 

About the Translators:

Phyllis Aronoff and Howard Scott won the 2018 Governor General’s Literary Award for their translation of Descent into Night by Edem Awumey.

Howard Scott and Phyllis Aronoff won the 2018 Governor General’s Literary Award for their translation of Descent into Night by Edem Awumey.

 

Target Audience:

Neonatal clinicians, parents and families of premature babies.


 
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